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      Binghamton Stepping Out to Cure Scleroderma Walk in Binghamton


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      June 2, 2019

      Sunday   9:00 AM - 12:00 PM

      Otsiningo Park
      Binghamton, New York 13905

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      EVENT DETAILS
      Binghamton Stepping Out to Cure Scleroderma Walk

      Binghamton, NY— Living with scleroderma is challenging, especially for Robert Truman of Montrose, PA, who was diagnosed with systemic scleroderma in 2004. That’s why Robert and his team of family and friends, “Bob’s Babes,” have been fundraising and will walk in the June 2 Stepping Out to Cure Scleroderma event at Otsiningo Park in Binghamton. Organized by the Scleroderma Foundation Tri-State chapter, the walk brings together families and individuals whose lives are affected by scleroderma to fundraise to fuel the organization’s mission of support, education, and research. Sign up online at www.scleroderma.org/steppingoutbinghamton or call (800) 867-0885.

      Robert has been fortunate to not have had any heart, lung or kidney issues. However, he struggles continuously with fatigue, intense muscle and joint pain, an inability to tolerate cold temperatures (or anything cold), and esophageal issues.

      “No matter how poorly I might be feeling on any given day someone else is feeling worse,” said Robert, “I was so fortunate to be treated early on with that was then experimental it helped me tremendously. This is why it is so crucial to raise funds to further education, awareness, and research.”

      The month of June is National Scleroderma Awareness Month throughout the United States, where the Scleroderma Chapters throughout the country will be hosting walks to promote awareness and raise funds for research. As an unfamiliar disease, scleroderma affects 1 in 1,000 people with 75% of the patients being women. Scleroderma is a chronic, autoimmune disease which, while currently having no cure, has several new treatment options that improve the quality of life and life expectancy.

      All funds raised will help provide education and support services at the same time that they fund research to discover the cause, understand the mechanism, and overcome scleroderma forever. Stepping Out to Cure Scleroderma walk will include a variety of food, raffles, and entertainment in a fantastic park atmosphere.

      Want to make a difference or get involved? There are many ways you can help. Register for the walk or donate to a walker, team or the event at http://www.scleroderma.org/steppingoutbinghamton. Registration begins at 9 a.m. and the walk begins at 10:00 a.m. If you register before May 30th, the pre-walk registration fee for participants 16 years and older is $25 and after May 30th, the registration is $30. Registration for children ages 5 to 15 is $10 children under five are always free! All registered participants will receive a T-shirt.

      This year, the Binghamton Stepping Out to Cure Scleroderma walk is sponsored by our corporate sponsors: Actelion, Bayer, Boehringer Ingelheim, Reata Pharmaceuticals, Arizona, and Bethpage FCU.

      For more information on scleroderma and the Scleroderma Foundation / Tri-State, Inc. Chapter, call (800) 867- 0885 or visit www.SclerodermaTriState.org. You can also find us on Facebook, Instagram, Twitter and YouTube.

      Cost: Payment required - Register for the walk or donate to a walker, team or the event at http://www.scleroderma.org/steppingoutbinghamton. Registration begins at 9 a.m. and the walk begins at 10:00 a.m. If you register before May 30th, the pre-walk registration fee for participants 16 years and older is $25 and after May 30th, the registration is $30. Registration for children ages 5 to 15 is $10 children under five are always free! All registered participants will receive a T-shirt.

      Categories: Fundraising & Charity | Health & Wellness

      Event details may change at any time, always check with the event organizer when planning to attend this event or purchase tickets.